Monday, June 30, 2008

true to her name

below are a few definitions of maya's name. when i was in college i knew a girl who's name was maya. i thought then and there that if i ever had daughter i would name her maya. as the years passed and i started to study buddhism, i discovered that the word maya has a very complex meaning.

true to her name, maya's name shed so much light on what this life is about. because she was diagnosed with down syndrome she created a new world for me, she had me questioning reality. my ideals of what my daughter would be like took a new shape and meaning. it's quite ironic because i had a perfect picture in my head how maya would be, and i had to let go of that illusion right away to accept who she is. it felt like a great teaching.

meanings of maya:
The girl's name Maya \ma-ya\ is pronounced MYE-ah. It is of Spanish, Hindi and Russian origin. In Spanish, short form of Amalia. In Hindi, from Sanskrit, meaning "dream, illusion". In Russian, a form of Mary. A star constellation.

maya (mä'yä) , in Hinduism, term used in the Veda to mean magic or supernatural power. In Mahayana Buddhism it acquires the meaning of illusion or unreality. The term is pivotal in the Vedanta system of Shankara, where it signifies the world as a cosmic illusion and also the power that creates the world.

Sunday, June 29, 2008

welcome to holland

this is an article that i was given by one of the organizations here. it does a great job of describing what it's like to find out your child has down syndrome.

emily has inspired and helped many people with this article...including myself.

Welcome to Holland
By Emily Perl Kingsley

Monday, June 23, 2008

inspiring story

someone posted a link to this article at the down syndrome society and i really thought it was inspiring.

from the chicago tribune, "Despite Down syndrome, son jumps at any chance to follow his dad"

Sunday, June 22, 2008

a new dream called maya

i've asked myself why blog? after having this blog account for over a year i've finally decided it's time i start using it. before i was on the fence about it because i've often thought that people that blog are basically exposing things about themselves that perhaps no one really wants to see/hear. it almost seemed like a waste of time to me. it wasn't until maya chose to come into my world that i started to investigate blogs again.

i started reading a book named GIFTS: Mothers Reflect on How Children with Down Syndrome Enric
h Their Lives it was here were i started seeing blogs by mothers that have children with down syndrome. as i started to read some of these blogs i felt as if i was part of a community. i have been enjoying reading what others lives are like with their children. it gives me hope and encouragement. so i have decided to create this blog for my daughter. i see it as a form of advocacy.

before maya came to me, i didn't have much of a clue about people with down syndrome. i had worked in a group home for adults with disabilities when i was in college for a short while, and have always had a special feeling when i saw people with down syndrome but that's about it. while i was pregnant i found myself looking around for people with down syndrome. where are they? why aren't they interacting with the rest of society? now that maya has come into our world i can see that she has opened my eyes in so many ways. it seems that she has touched so many people just by existing. she has brought awareness into peoples lives that didn't even know what down syndrome was. she is an advocate. i feel so blessed to be a part of her world...i hope you also enjoy her.