Saturday, June 19, 2010

walk this way!

it's happening! that's all i keep saying to myself.  every time i see maya get up and start walking i feel a sense of calmness.  it seems strange but i feel calm inside...content that my little bugger is getting around more on her hind legs.  she has started to take her own steps here and there, without us even saying a word to her about it.  15 steps here 20 steps there.  she even has surprised me and has walked into the room when i didn't expect it. 

this week has been magical.  i enrolled her in a "gym" class for the next couple of months.  i did it in the hopes that maya would be more interested in walking and interacting with others.  i am so happy to see that she is really getting into it.  this week, she has started to walk around the gym and has been exploring her surroundings. 

oh my goodness!  it's sooooo much fun to see where she is going...i just watch with wonder.  besides the calmness in my mind...i have started to feel a little bit of anxiety.  that is so funny, two extreme opposites, huh?! yes, calm because she is finally getting into walking...and anxiety because she is walking towards objects that she could potentially fall onto or hit when she loses her balance.   i know this is what all mom's go through so i'm not too stressed about it.  i would never trade these feelings for anything, because hearing her little feet go pitter-patter is music to my ears.

Thursday, June 17, 2010

two friends slide

maya and T climb the slide one after another.  he looks over to maya, waiting to see if she was coming up the steps.  when she reached the top she stood behind him, they looked at each other. waiting, deciding what was next.

-it was a tender moment for me.  seeing her interact so well with her friend.  two year olds don't know the difference between typical and special.  they are just friends.  i wish it could always be that way. no judgement about their differences.-

he slid down the slide. us moms cheered for the fun.  it was maya's turn and T waited at the bottom for her to come down.  i helped her sit down at the top of the slide and then she pushed herself to start.  she was giggling all the way down.  once at the bottom, T says maya's name in a cute toddler voice, the voice they have when they are trying to say new words.  he runs to the slide steps again and maya follows.

Wednesday, June 16, 2010

monica and david

so excited to see this documentary.  there are a few screenings of it this summer one of them at the National Down Syndrome Congress Convention in florida.   so if you are going there check it out and let me know what you think.  i hear it will also be shown on hbo in october.  i can't wait!

check out the trailer at,
they are also on facebook and twitter.  spread the word.  =)

MONICA & DAVID explores the marriage of two adults with Down syndrome and the family who strives to support their needs.  Monica and David are blissfully in love and want what other adults have—an independent life.  Full of humor, romance and everyday family drama, the film uses intimate fly-on-the wall footage to reveal the complexity of their story.  While Monica and David are capable beyond expectations, their parents, aware of mainstream rejection of adults with intellectual disabilities, have trouble letting go.

wordless wednesday: she smiles. she's free.

Thursday, June 3, 2010

ear tube surgery

last summer it was eye surgery, this summer it's her ears. i hope that's all we need for a long time. =)

just wanted to report maya did very well with her surgery. i got her in the car still half asleep and she didn't complain at all during the waiting. the only time she was cranky was when they took her away. and of course when she came out of surgery. she just doesn't like anesthesia. even though it was only gas, she still cried a lot when she came out.

it only took an hour really for her to get back to normal once we were home. and the greatest thing of all was when she started to stand up and walk around. she has been taking at least 10-15 steps more frequently now.  her balance seems so much better. i'm so happy for this!