Thursday, August 7, 2014

Back to school!

It's back to school week!  Yay!  Maya is a first grader!

So far things are going really well.  Maya has a great team at school.  I am so grateful that she has such great teachers and aides.  She is excited to get on the bus every morning.  This is a good sign.

I realize that I don't have as much time to write as I used to so I'm trying a new approach and will post just a few lines here with images.

Last week we did intense potty training and so far things seems to be going really well at school.  Monday she had an entirely dry day and yesterday also.  Only one accident the other times and only at school.  I see a change in Maya.  She is starting to go to the potty without me having to drag her there. This morning after I asked her if she had to go potty, she did not give me her usual "no" answer.  She got up on her own and walked to the potty.  I'm hoping this is it.  We have come close several times and then things seem to slowly fall apart by the third week.  So here's to success during our second week!  All that matters is that we keep trying.  

As with everything, Maya gets to her goal in her own pace.  I honor that.

First day of school: lunch box napkin

Looking out the bus, ready to go to school.

In the afternoon, Maya made sure the bus driver was wearing his hat.

Bye, bye, bus!  See you tomorrow.

Monday, June 9, 2014

Liberation feels good!

Maya had a great year in kindergarten.  Our first year in our "home" school was wonderful.  Maya had a great team that was open to making modifications to best suit her needs.  I'm very grateful for the teachers and instructional aides that were so willing to get to know Maya.

What I'm learning is that I need to give Maya the opportunity to be herself.  She is who she is and I can't compare her to typical children.  I have to let her be the interesting character she is and let her develop her own story in this book of life. She does not fit into the mold of a child of her age.  Yes, all children are unique but Maya has Down Syndrome and she also has other characteristic that perhaps a typical child does not have.  These things make her different but they don't take away from the fact that she is a child who enjoys many things like swimming, dancing, dress up, giving hugs and not going to bed on time.

I'm trying to find the balance of having her be exposed to what typical children like, but at the same time I realize that she might not even care about those things.  Birthday parties are notoriously an issue for her.  She doesn't like all the crazy loud things that go on with birthday parties.  She doesn't like the "happy birthday song".  For so long I tried to get her to go to these events and I still feel it's important but I've come to the realization that we might not stay very long at these parties.  We certainly don't stay for cake and the HB song.  I believe that this is a lesson for me to learn because Maya could care less about this.  In some ways I wanted her to be included so much with typical kids that I wasn't letting her be who she is.  Letting go of that yearning for a typical child is helping me love and accept her for who she is and what she offers us in this life.

It's OK to be different.  That's what I'm learning.  It feels liberating.