Monday, July 25, 2011

"Maya, Where have you been?"

This summer has been so busy.  The summer before Maya was three was just a sign of hot months passing in the desert.  Now that Maya is in preschool, summer is our time to travel and kick back a little.  We've certainly taken advantage of this time away from school schedules.  So far we have taken four trips out of state.   It's been awesome on many levels but it's been also quite exhausting.  Traveling with a three year old is always an adventure.  We are lucky that Maya does very well on the plane and usually doesn't have any major issues with new environments.  Thank goodness for ipads and ipods because they really help us get through those long hauls.

A few firsts happened this summer, first Maya was able to spend some time with her Great-Aunt and Uncle from her Dada's side.  They were visiting from India so it was a special occasion. She also went to the beach for the first time and got to splash around a bit in the water.  She just loved the waves! We visited two new children's museum's, one Cali and Texas. Finally we were able to visit a wonderful park called Morgan's Wonderland, in San Antonio.  This park was designed to provide a fun environment for ALL abilities of children to play and experience.  Maya's favorite activity there was the water table and sensory building.  We also had a chance to ride a train around the park and play on the playground. It is truly a special place for all children.

Here are a some highlights of the milestones Maya is accomplishing lately:

Maya new word is help.  This is huge!  One night when I was on the computer she came to me and grabbed my shirt and said, "hhhheellp".  The p was mostly silent but I could hear exactly what she said.  She had a little game in her hand and wanted me to open the box for her.  It was so amazing to hear this word used in an appropriate manner.    Since then she's been using it often, when she needs help and just for saying it.  I'm thinking the H sound is a new and interesting sound for her since sometimes she repeats it over and over almost as if she is astonished by the sound itself.

Another big change that I see in Maya is that she is starting to use two and three words (ASL) together.  We have been working on this for the last three months very intensely.  For a long time now we have always used "please" after we ask for something but in the last three months I started to add the word "want".  So I sign to her "what you want?" or "you want barney?".  It has taken a little time for her to learn the word "want". I do think it is an abstract concept, not so much an object or an action.  The other curious thing is that she signs it backwards.  "Want" is signed almost like you are grabbing something face up moving towards you...she signs it the other way, fingers facing her.  It's hard to explain but I wonder if it is because she is mirroring the action.  I'm not complaining at all about how she signs it, because the fact that she is using this word at all makes me so happy.  Today I asked her, "which you want? fruit or waffle?"  She signed, "want fruit please".  Yes!!!   Just the other day she signed, "want ice cream please".  You know she got it.  =)

While all this is going on, I see that Maya is also starting to vocalize more.  She isn't really saying clear words yet, but she is trying to mimic the sound.  It seems to always be the sound at the end of the word, like "eeee" for please or "aaaak" for quack.   I hear her sometimes trying to sing along with barney songs.  Many times I have found her reading books, not in silence anymore, not just using her ASL signs, but now using her voice.  She makes expressions when she is reading the pages and tries to say the words.

I really have to hand it to Barney for changing Maya's life.   There are  four shows that Maya really responds to, Signing time, Barney, Hi-5 and The fresh beat band, but Barney has really brought a lot of personality out of her.  I've noticed that she has more patience in listening to the storyline now than before.  She even laughs at some of the jokes now.  The happiness in her eyes when she sees barney is just priceless. Thank goodness for Barney.

I have to say that all these accomplishments mean so much more than they usually do because some days I do feel a bit discouraged.  For a while there it almost felt like we had hit a wall.   My theory has been that she is on the verge of a breakthrough and she is just frustrated.  But the other part of me wonders if some of this has to do with the new discovering that she has sensory issues.  The hardest part is that these behaviors in my mind have pushed others away from her and enable her from interacting in public settings.  I often feel like she doesn't quite understand how to relate to other children.  Then there is the environment that I can't control.   Whether it's too much going on around her or certain sounds that she can't stand, it sets her off and there is no going back.  My poor girl becomes someone else and I feel so helpless in knowing how to calm her down.  I feel so perplexed because I wonder how this little person that does so well with her therapist can fall apart when she interacts with her peers.

I do see hope coming our way though, this week I'm taking Maya to an evaluation with an occupational therapist who has done a lot of work in this area. My hope is that once Maya is evaluated we can begin the journey in dealing with these behaviors.  I'm so looking forward to learning all about sensory processing.

Here are some photos from our summer adventures...

Maya's first time on the moving walkway in the airport.  She loved it!

Just chilling in Cali with our friend and doggies.
Maya reading the alphabet at the San Jose Children's Museum.

Maya and her cousin watching Barney in Cali.

At the playground with her cousins.  So much fun!

Doesn't she look so big?!

Maya's first time at the beach, Newport Beach Cali.


She loved the waves!

Looking cool on the beach.


Playing and dancing on the playground.

Our first time at Morgan's Wonderland.

The water station was one of Maya's favorite activities.

Train ride with Grandma.

Wednesday, July 6, 2011

wordless wednesday: Maya is growing!



We are having such a busy summer I haven't been able to write very much lately.  Thought I'd post this quick wordless wednesday shot, not very wordless since I'm writing this, but oh well.  I'm in the middle of writing a long needed update and will post that soon.  Until then, enjoy this snap I took of Maya at the hardware store on fourth of July.  When I saw this photo I just thought she looked so tall.   She's growing right before my eyes.   

I hope everyone is having a fabulous summer!  Take care! 

Friday, May 13, 2011

sensory issues

So today I had an interesting conversation with Maya's preschool teacher.  We started talking about the adaptive chairs that they just got for some of the students (Maya being one of them).  She said the OT ordered them.  And on that subject somehow we go onto the fact that Maya has sensory issues.  Honestly I felt so baffled that no one has addressed this issue with me before.  I mean yes, I know that Maya doesn't like loud noises like children crying or screaming, the vacuum cleaner or when you blow your nose....I chalked it up to the tubes in her ears (that's when it seemed to start).  I didn't realize this effected other parts of her life.  

This is the reason why Maya loves to spin in circles.  This is the reason why she shakes her head back and forth uncontrollably sometimes...this is the reason why she often can't sit still anymore.

One of the aides showed me how she calms Maya down when she gets into circle time.  It was amazing to see the aide sit her down and just by giving pressure to her arms and hands, Maya calmed down and quietly sat in her lap.  She didn't wiggly or shake her head...in fact she held out her arms like she wanted more.  She had a look on her face that was so peaceful.  It was amazing.  The teacher went on to say that the OT is looking into getting Maya a weighted vest so she can wear it when she gets wiggly.

I honestly know nothing about Sensory Processing Disorder (sometimes called "sensory integration" or SI).  But I sure am going to be researching more about this now.  In many ways this fills in the blanks for me and my feelings of Maya not be able to play and interact with her friends appropriately.  It gives me some peace of mind because now I know there is a name to these actions.  I am so grateful that the teacher and aides are able to work with her in the classroom.   If no one ever told me about this then I would probably still be wondering why my sweetie pie is acting this way.


Here are a few sites I found so far that seem to define SPD and it's symptoms.  If any of you out there have any experience with this I would love to hear from you. I have so many questions about this subject now.

The Sensory Processing Disorder Foundation:  http://www.spdfoundation.net/about-sensory-processing-disorder.html

Sensory Processing Disorder Checklist: http://www.sensory-processing-disorder.com/sensory-processing-disorder-checklist.html

Bright Tots http://www.brighttots.com/sensory_integration

Monday, April 18, 2011

my little genius

A few weeks ago I posted about how Maya was working with her speech therapist on matching pictures to a picture board.  This last week I decided to take out the See and Learn Language and Reading materials that I purchased a while back.  By the way this is all free to download from their website. How cool is that!

I could make up some excuse about how busy I am or how I thought Maya was not quite ready for this activity, but I really have no excuse except my laziness.  Maya has over 100 signs, she has been working with flash cards for a long time and she loves reading/looking at books.  I know these are all parts of the foundation in learning to read.

So on Friday I took out the 50 sight/picture cards from the first word pictures, packet.  A photo of an object is on one side and the word is on the other side (IE: spoon, apple, cup, brush...etc.).  As I handed the cards to her she started to sign the word without me even saying a thing.  She automatically told me what was on the card.  This is actually one of the first activities you can to do with the cards. It was as if she knew what was coming.

Next I took out the 15 picture boards from the packet.  Quickly I placed the first board on the floor.  I handed Maya the little picture card so she could match it to one of the four photos on the board.  I have to tell you that I was so freaking impressed with my daughter.  Wow!  First off she was matching the picture card with the boards faster than I could find the next card, she did all of them and only missed two, and she even signed the word to me as I handed them to her.  

In more ways than one, this exercise blew me away.  I was so proud of her work but at the same time it made me wonder, "Do I not give her enough credit?".  Because she isn't speaking maybe I forget that Maya knows so much more than she can communicate.  She CAN understand these kind of tasks.  Just because she isn't talking doesn't mean she can't put two and two together.  I tell her everyday how she is smart...and now I have to tell myself that too.  She is capable of learning just like everyone else, she just needs it to be shown to her in a different way than most.  

Now more than ever she seems thirsty to learn and ready to try anything new.  My job is to challenge her more so she can excel.  Next we will work on the second packet, first written words.  I can't wait to start and tell you all about it.


matching action images